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6 min read
5 Most Common Health Risks for Adults with Down Syndrome
The prevalence of these conditions within our community will shock you and become urgent calls to action! In addition to the various...
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6 min read
The Rough Edges of Independence
10 Pitfalls to Prepare for in Advance We may plan for years for independence for our adults with Down syndrome by providing...
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6 min read
Red Flags to Watch Out for During your Residential Living Community Search
How to Identify Them Before It's Too Late Congratulations! You've prepared your family for the big move for your adult son/daughter with...
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3 min read
Independence Resources for Adults with Down Syndrome
It's never too early...or too late...to plan Through the Beyond Down Syndrome blogs over the last 18 months, we've covered a wide variety...
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8 min read
DS Independence: Finding the Right Place
The 5-Step Process to Guide You In the last couple of blogs, I've described our daughter's move out of the house and into an independent...
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5 min read
Move Out: Triumph or Tragedy?
After 6 weeks apart, it's time to assess Last month was the culmination of years of effort by Gwendolyn and our family. After years of...
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4 min read
Gwendolyn Moves Out
How it feels when it really happens... For Gwendolyn and our family we believe, as with her siblings, she can have it all. Each would...
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4 min read
A Unique Father-Daughter Bond
How We Played, Teased, Aggravated, and Leaned on Each Other Gwendolyn is nearly 27. She is the oldest of three kids of Steve and...
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4 min read
Don't Listen to the Naysayers - Help is Coming
Person-Centered Planning and an Independence Guidebook help lead the way Discard the Naysayers From the moment we discover we had a baby...
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4 min read
Overcoming Down Syndrome Plateaus
What to do when your adult with Down syndrome feels sluggish We all plateau at times. We get kinda sluggish, stuck in a rut, losing some...
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4 min read
5 Things Parents of Adults with DS Worry About
...and what we can do about them now! Including Cooking with Gwendolyn: French Toast + Sausage...Yum. Being a parent of a child with...
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5 min read
7 Steps That Can Make a Difference Now
Understanding the Spectrum of Down Syndrome and What We Can Do Now Including Gwendolyn performing "I Am Beautiful" in commemoration of DS...
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6 min read
It's Never Too Early to Prepare for Independence
4 Tips for New Parents For new parents, independence for their child with Down syndrome may seem like only a distant dream. It is so far...
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6 min read
This Just Can't Wait - Resources Due You
Too many people are unaware of all the financial resources available Every time I talk to parents (or guardians) at my daughter's school...
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5 min read
The Ten Considerations of Independent Living
Beginning to understand options and the two hard truths Last month we established a broad definition of independence for adults with Down...
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4 min read
What Does Independence Mean To You?
Planning Futures with our Adults with Down syndrome Earlier this year, I shared how our kids' dreams should be ours. This website is...
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4 min read
What Goes on in Their Head?
Adults with Down syndrome often drop subtle clues to their thoughts & dreams #Downsyndrome #Habits #UPLiftingGuidebookProject...
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2 min read
How is Your Adult with DS Handling COVID?
In Search of Independence for Adults with Down syndrome #COVID19 #Downsyndrome #Independence #UPLiftingGuidebookProject...
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5 min read
Their Dream Should be Our Dream
In Search of Independence for Adults with Down syndrome We all want our independence. It's a natural human drive. A recent study showed...
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5 min read
Critical Info for Adults with Down syndrome
Highlights from NDSC's Convention from your Couch The National Down Syndrome Congress has adapted to our current pandemic lifestyles and...
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4 min read
Caregivers of Adults with Down Syndrome Need This Info - NDSS' Virtual Adult Summit (2nd Half)
In light of Coronavirus-related lockdowns and social distancing, the National Down Syndrome Society converted its annual Adult Summit to...
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5 min read
Insights You Need from NDSS' Virtual Adult Summit (1st Half)
In light of Coronavirus-related lockdowns and social distancing, the National Down Syndrome Society converted its annual Adult Summit to...
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5 min read
Valuable Insights from NDSS' Virtual Adult Summit
In light of Coronavirus-related lockdowns and social distancing, the National Down Syndrome Society converted its annual Adult Summit to...
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1 min read
Beyond Down Syndrome...IN SEARCH of INDEPENDENCE
Our website and upcoming BLOG will serve many purposes: Chronicle the development of The UPLifting Guidebook Project. Gather research...
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