Welcome to
BEYOND DOWN SYNDROME
Home of
THE ESSENTIAL GUIDE
for FAMILIES with
DOWN SYNDROME
Plans and Actions for Independence at Every Stage of Life

Video & Podcast Offerings
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Latest Guest Podcast on Independence:
Independence can be scary and overwhelming, especially for those in the Down syndrome and I/DD community.
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Our Independence Checkup gauges how you are progressing and provides essential guidance to keep moving forward.
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After you complete this form, you will receive your score and essential information to advance your independence journey.

Welcome to
The Essential Guide
Worksheets
These worksheets partner with your Essential Guide book. Worksheets include The Independence Plan which provides a timeline and a form to document your progress including forming your own Independence Team, developing a Chores & Hobbies Checklist for your self-advocate, populating your own Social Circles Model, monitoring Health risks, planning your Financial and Legal considerations, and evaluating Housing options.
Each form can be printed and saved so you can continue to update them throughout your journey.
Each worksheet partners with specific chapters/sections in The Essential Guide so you can reference material in creating and updating your own plan.
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Once you subscribe to these worksheets here, you will be able to directly access all worksheets without further sign-in. Your subscription will also provide you with the weekly Beyond Down Syndrome blog postings and a growing list of resources for your family's journey.*
*At BeyondDownSyndrome.net, we never share your email or spam your account.
You may unsubscribe at any time and continue to have access to The EG worksheets.