Welcome to
BEYOND DOWN SYNDROME
Home of
THE ESSENTIAL GUIDE
for FAMILIES with
DOWN SYNDROME
Plans and Actions for Independence at Every Stage of Life
'March to Independence' - YouTube Series
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Independence
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Safety & Relationships
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Health & Wellness
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Financial/Benefits
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Legal Protection
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Continuing Education
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Community Inclusion
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Work
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Communications
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Housing Options
Independence can be scary and overwhelming, especially for those in the Down syndrome and I/DD community.
Our Independence Checkup gauges how you are progressing and provides essential guidance to keep moving forward.
After you complete this form, you will receive your score and essential information to advance your independence journey.
Available to share strategies, stories, and resources to empower families with Down syndrome to pursue independence at every stage of life.
Steve Friedman is available for in-person and virtual discussions at your conference, workshop, or Down syndrome organization.
Contact Steve Friedman HERE to begin exploring opportunities.
Upcoming Engagements:
Community engagement and Independence Workshop with the South Texas DSA in San Antonio.
Joining NDSS' Adult Summit in Cincinnati as a panelist and exhibitor
An online independence webinar sharing key components and resources for your independence plan. Plenty of time for Q&A.
Talking about early life challenges and preparation for independence for families with Down syndrome.
Talking about local Down syndrome issues.
Sharing independence resources as at exhibitor at the annual NDSC Convention.
Hosting a gathering of local families with Down syndrome to talk about community and independence.
Webinar on Independence
Joining The Farmer's House Luau to talk independence with parents & caregivers.
We're thrilled to be visiting DSI of Kansas City on April 27th. Let's talk 'Independence!'
We're visiting DSACO in Oklahoma City April 26th! If you are in the area, come join us.
We are visiting the Down Syndrome Guild of Dallas on April 25th. Join us on the March to Independence tour!
I'm joining Mary Cardle and the T21.com podcast in April to talk about independence. Stay tuned for release date!
Join me for a Book Club discussion of The Essential Guide for Families with Down Syndrome with Michelle Slape of DSAIA on April 18th.
An Austin-area gathering of parents to talk about independence for their loved ones.
Official Book Launch celebrated with many foundations and service providers within the Austin Intellectual Disabilities community.
Over 300 celebrate the amazing students of Houston's FoDS.
DSAIA's annual convention (March 2-4) shares strategies and resources with Down syndrome organizations from across the country.
Housing podcast dives into the dynamics of Down syndrome.
We talk about all aspects of independence for the intellectually disabled in this 2-part series.