Welcome to
BEYOND DOWN SYNDROME
Home of
THE ESSENTIAL GUIDE
for FAMILIES with
DOWN SYNDROME
Plans and Actions for Independence at Every Stage of Life
'March to Independence' - YouTube Series
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Independence
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Safety & Relationships
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Health & Wellness
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Financial/Benefits
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Legal Protection
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Continuing Education
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Community Inclusion
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Work
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Communications
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Housing Options
Independence can be scary and overwhelming, especially for those in the Down syndrome and I/DD community.
Our Independence Checkup gauges how you are progressing and provides essential guidance to keep moving forward.
After you complete this form, you will receive your score and essential information to advance your independence journey.
The Independence Checkup Report
Thanks for taking our Independence Checkup.
Your score is out of a possible 64.
A score over 60 indicates you are doing a great job!
A score in the 50s indicates you may have some gaps to work on.
A score below 50 indicates it's time to develop your plan one step at a time.
Whether you are just beginning your independence journey or working to fill in some gaps,
The 10 Steps to Independence is a great place to start.
The Checkup questions cover 5 main categories. Here are some resources to help you on your journey:
Ages 0 - 15 Insights
Ages 16+ Resources
Health & Wellbeing Common Issues
Financial & Legal Considerations
The Essential Guide for Families with Down Syndrome:
Plans and Actions for Independence at Every Stage of Life
You can also find additional resources here:
