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Independence Resources for Adults with Down Syndrome
It's never too early, nor too late, to plan for independence Through the Beyond Down Syndrome blogs over the last 3 years, we've covered...
4 min read
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The Inclusive College Experience at ClemsonLIFE
There are currently 310 post-secondary education (PSE) programs located across 49 states. As the number of programs continues to expand...
5 min read
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LuMind IDSC: Pursuing a World without Alzheimer's
Most of us know a family member or friend with dementia or Alzheimer's disease. In fact, nearly all of us do! Adults with Down syndrome...
7 min read
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Celebrating Marbridge: A Model Living Community
For those of you who joined the Beyond Down Syndrome journey a while ago, you may know our daughter, Gwendolyn, now 29, achieved her...
8 min read
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Independence is a Lifelong Journey: Go Flourish!
About 10 years ago, Gwendolyn came home from school and stated emphatically, "I want to be independent." She had watched her younger...
5 min read
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The Other 'D' Word: Divorce and How to Get Through It
The other D-word. Divorce. It’s a word we hate to think about, or even say. It’s not something we think will ever happen to us. Sure...
7 min read
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Ms. Boyd Shares Her Teaching Gifts
My name is Calista Boyd and I have been teaching all ages from preschool to college remedial reading over the past 40 years. I enjoyed...
4 min read
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Moment of Truth (& 10 Ways to Lose Your Benefits)
Moment of Truth Typically when our loved one is in their teens or early 20s, they will reach their "moment of truth." This sounds like a...
8 min read
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Inclusion: Lifelong Choices Each Family Should Consider
To be honest, "inclusion" was always a sensitive word for us. Sure, as new parents of a beautiful daughter with Down syndrome, we have...
7 min read
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Tips and Resources for Dual Diagnosis Families
As a parent walking the road alongside many families who have a child with Down syndrome, we’ve had both challenging and rewarding...
6 min read
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Rosaura Shares the Pain of Dual-Diagnosis
When Ethan was discharged from the hospital, they sent us to meet with the social worker. I don’t remember much of our conversation, but...
7 min read
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Rediscover Best Buddies: Building a More Inclusive World
Guest blogger Tracy Churchman shares the amazing offerings and wonders of today's Best Buddies program Hi, my name is Tracy Churchman and...
5 min read
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Carolyn's Inspiring Story of Daniel Overcoming Communication Challenges
My name is Carolyn and I started out my career in education and have worked with people with disabilities for 40 years. I had been...
5 min read
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Their Dream Must Be Our Dream
Putting Our Loved Ones First We all want our independence. It's a natural human drive. A recent study showed personal happiness is most...
6 min read
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Chatty Camille Still Tackling Social Challenges
Camille and her mom Larina tackle the hidden challenges of socializing with DS Brian and I live in Davidson, a vibrant college town just...
5 min read
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Valuable Resources for Families with Down Syndrome
50 linked resources to support your self-advocate's independence journey During Gwendolyn's independence journey, we've gathered some...
3 min read
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Can't Envision Moving Day? Now You Can!
The 4-Step Process to Finding the Right Place In the past, I've shared blogs about our daughter's journey to independent living. I've...
9 min read
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Individuals with Down Syndrome are NOT Always Happy: This is How You Can Help
Guest blogger Michele Mattox provides lots of essential and sage advice to help address mental health challenges for our loved ones with...
8 min read
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Gwendolyn Moves Out
How it feels when it really happens... For Gwendolyn and our family we believe, as with her siblings, she can have it all. Each would...
6 min read
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Dutch is Paving his Own Independence Path
Rebekah shares her heartwarming story of goal setting and support to help Dutch gain employment and a place of his own. Dutch was born in...
5 min read
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Guardianship and Alternatives
Guardianship is one of those essential topics families with Down syndrome should not avoid. You do have options but if you do nothing,...
8 min read
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Fionn's Story of Determination is Inspiring
We are Jonathan, Veronica, and Fionn. We currently live in Ireland. Fionn is 26 and has Down syndrome. Years ago, we asked our teenage...
4 min read
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Overcoming Down Syndrome Plateaus
What to do when your adult with Down syndrome feels sluggish We all plateau at times. We get kinda sluggish, stuck in a rut, losing some...
5 min read
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Ayla's Journey Through the Storm
A heartbreaking story of personal regression and the journey to return Something was happening to my stepdaughter, Ayla, in the fall of...
6 min read
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