Welcome to
BEYOND DOWN SYNDROME
Home of
THE ESSENTIAL GUIDE
for FAMILIES with
DOWN SYNDROME
Plans and Actions for Independence at Every Stage of Life
LAUNCHING MARCH '23
The Essential Guide provides step-by-step support to:
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Inspire mindset shifts toward one of independence and possibilities
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Foster independence building blocks from the earliest age
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Highlight health risks and financial resources every family must know
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Detail education and work options to promote community inclusion
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Evaluate family- and community-based home options including search process
The Guide presents action items and worksheets to equip you with a clear timeline and path. The resources and references sections will save you time and money in your search for information and organizations that support your family’s journey.
“As parents, we are the experts of our loved ones, and this is an excellent resource in navigating our own decisions to better support the goals and dreams of those we love.”
Tara Goodwin, D.O., Adult Down Syndrome Clinic, QuestCare Dallas
Friedman intersperses relatable and inspiring stories from a wide array of families. Insights from many experts in the fields of communications, education, health, and financial planning provide the confidence and guidance for you to navigate your family’s path toward independence.
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